• All for Him, Tiffany

Enteropathic Arthritis

In August I saw my Rhuematologist for my follow up appointment to discuss my x-rays, bone scan and bloodwork. Praise the Lord I don't have Rheumatoid Arthritis, but I do have what's called Enteropathic Arthritis because of my Crohn's disease. Unfortunately, It's very common for someone with an autoimmune disease to have more than one.


I've had excruciating joint pain off and on for the last 10 years, in fact that was my second symptom I went to the for doctor way before I knew I had Crohn's disease! It comes and goes with my Crohn's symptoms and obviously worse when I have a flare up. This time around has been so painful and one of the longest times it's lasted.


Right now I need a lot of extra help. I have a lot of joint pain especially in my hands up to my elbows and my feet. I can't do daily things like open water bottles, stir up oatmeal, fold laundry, or carry heavy items. It hurts for the twins to hold my hands too tight, my knees and feet can't do long walks, and I can't color with the kids or do things that require a lot of hand movements. I feel like I'm always moving because of the pain and trying to get comfortable. But God! He's still so good and I'm still so blessed!


My RA doctor started me on Humira injections which I think have helped some, I'm not crying because of the pain so that's a win! He told me that I unfortunately won't be "normal" and to count any improvement as a win. To be honest, before that appointment I didn't count any improvement as a win. We've tried so many other doctors, different types of doctors, vitamins, supplements, tests, medications, diets - you name it and nothing has given long term relief. It was hard to hear that I'll never be "normal" (which in the back of my mind I already assumed) but as the same time I needed to hear that I need to count any improvement as good.


So that's what I'm trying to do, to be thankful that yes I'm in pain but it's better than it was, therefore, it's a win!


We don't know how long we have with our loved ones, so I'm praying for the Lord to help me number my days and to give me wisdom as I go through them.


"So teach us to number our days that we may get a heart of wisdom" -Psalm 90:12

I'm thankful for Corona because it has grounded Ryan from traveling and I honestly don't know how I'd do the daily things without him. He's been able to make almost all the meals, wash the dishes, help dress the twins - things I never imagined I'd need help with.


I'm a very strong independent woman and have had tears streaming down as I say "I can't do it, I need help." Talk about humbling! I've gotten better with asking for help and Ryan & the kids have SO much love, grace and willingness to help. My mom-in-love has been folding our laundry and helping comb Amiyah's hair and so much more. I'm so blessed.


"How do you do it?!" Prayer, lots of prayer. And I get up every morning before the sun does and study my bible, get to know God more. I can't do this (or anything for that matter!) in my own strength. But with Christ I can.


I'm so thankful for all the help, love, prayers and encouragement through this trial. We all go through various trials at various times, Jesus told us we would. But He also told us not to worry because He has overcome the world!


“I have told you these things, so that in me you may have peace.In this world you will have trouble.But take heart! I have overcome the world.” -John 16:33
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